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Joined 1 year ago
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Cake day: August 14th, 2023

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  • My mums been in hospital for 10 weeks. She only 62 and was admitted for a fairly routine infection after chemo for breast cancer. Since she’s been in hospital I’ve lost count of all the things that have gone wrong but the most distressing thing is the hospital delirium she’s developed. I’d never have believed my mum could become so violent and abusive, it’s like she’s a completely different person. She has absolutely no agency over her body at the moment, she can’t even sit up unaided. It’s so horribly undignified that it’s completely cemented my decision to commit suicide once I get a terminal diagnosis (or a diagnosis that I know I couldn’t deal with graciously). I can’t have children so it’s a small comfort that I won’t inflict the pain and heartbreak I’m experiencing from my mum, but I don’t ever want to treat my partner how she’s treating my dad. I’m going out on my own terms if at all possible.





  • I’m mainly bed bound. I cannot maintain my blood pressure when upright, even when sitting, I faint regularly unless prone. I still have to go to the hospital and doctors regularly however - that is in fact the only place I do go, excluding visiting my dying mum 100 miles away.

    I’m on chemotherapy - I’m immunosuppressed and very vulnerable to infection. I’m also prone to chest infections and have to keep warm. I have cold urticaria - I’m literally allergic to the cold. I have severe Raynaud’s disease - again I have to stay warm. I have severe arthritis, the cold makes this much more painful and restricts my pitiful mobility further.

    Nice assumption, but no I can’t afford a car either. I swap in my disability benefit in for a car on the “motability scheme”. It leaves me with a whopping £100 a week to live off of. I could have an electric scooter instead but I have nowhere to store it and it’s not suitable for someone so vulnerable to the cold. My car is a self charging hybrid. I would love an electric car but I rent a flat - there’s nowhere to charge it.

    My point is not moot, because manual wheelchairs can fit into the majority of places. I cannot just walk in when I arrive, I need my wheelchair.

    We only have the one compact/small family car for our household, plus my manual wheelchair. Getting an electric scooter wouldn’t, couldn’t replace the car so getting one (with some hypothetical money) would be even worse for the environment.

    I don’t actually live in a “motornormative” culture. I grew up in London and live in Birmingham. There’s trains, buses, trams, electric scooters and the tube, which the vast majority of people I know use over cars. Your questions (and assumptions) are pretty ableist tbh, and all I’m trying by to point out that disabled people aren’t the enemy. “Not everyone can walk or cycle” is a true statement. Let’s focus on the people that can walk and cycle instead of the small minority of us already penalised by society for having the misfortune to be sick or disabled.



  • Nothing in that video matches your claim. It shows disabled and elderly people can benefit from walkable cities and non-car-centric road planning, just like everyone else can. But I, like many others, CANNOT walk, cycle or use public transport, no matter how inviting the infrastructure or how much I dislike cars.

    Could I use a mobility scooter? Sure! But not in the cold and wet and not when I can’t afford one. I could use it in addition to my car to get out on nice days or for short journeys to my local town but not instead of. And what am I meant to do when I get to the shops or cafe or whatever? Mobility scooters don’t fit in shops/cafes/restaurants unless they’re new buildings, which in the UK they’re invariably not.

    Insisting that everyone can just use alternative means of transportation is untrue and unhelpful to the cause. A small percentage of people will always need cars, just like we’ll always need ambulances. Let’s focus on the abled bodied people who don’t actually need to be driving instead of blindly insisting that everyone is the same and one solution fits all.



  • I’m a disabled person living in a city in the UK. We have a scheme that allows me to swap my disability benefits for a car or mobility scooter. The cars deemed suitable for disabled people using a collapsible wheelchair are “compact/small family cars” and that size is perfectly adequate.

    My most recent car is a seat Leon - a self charging hybrid. The mobility scheme I mentioned is really pushing fully electric cars and I’d absolutely love one. But being disabled often means being poor and like many other disabled people I live in a rented flat. There’s no EV charging at my block of flats. There’s no EV charging in my local town. I cannot afford to move, I can barely afford to survive. There are just SO many obstacles that aren’t being addressed in the UK it’s beyond frustrating.


  • I agree with your point as a disabled person - and here in the UK we kinda have this system. My car is registered disabled and therefore I can drive into LEZ, ULEZ and CC areas for free automatically. It’s a literal life saver when I survive off benefits, physically cannot use public transport, but I’m treated at hospitals in the very centre of London.

    But the term “handicapped” is outdated and is considered offensive by some. Perhaps stick to “disabled people” instead.







  • Yep, increasing the text size helped a little, but adjusting the spacing, alignment and margins helped a lot. I keep the margins thin/small, the alignment left justified and the spacing moderate-wide. Those adjustments plus the more legible font has made reading almost as easy as before my eyesight was damaged. I do have to focus more though, or the words/letters in the centre of my vision go walkabout!


  • I was able to show that people who stutter “stutter” when they read silently, as well as reading aloud! Although pressure/stress also makes stuttering worse, as you said.

    That anticipation you mentioned - it’s called your phonological loop. It’s a cognitive process that happens subconsciously when we form words in our heads before speaking or as we’re reading. One school of thought about the cause of stuttering (and what my research supported) was that people who stutter are over vigilant in their phonological loop. Everyone analyses their speech before it’s articulated to a certain extent, but people who stutter seem to over analyse it like they’re almost expecting an error due to their stutter. That over analysis increases cognitive load and makes you even more likely to stutter; a self fulfilling prophecy, as you said.

    I’ll take a look at my literature review later if I get a chance - I’ll let you know if I can find a paper about the effect of fonts.


  • I sustained damage to my macular last year and switched my kindle font to open dyslexic (as well as make the text larger and more spaced out) after reading became harder. That font helped to “anchor” the words down, particularly in the middle of my vision. Someone suggested a hyperlegible font which works almost as well but is better looking. From my very limited experience, I find the Cyrillic alphabet harder to read than the Roman alphabet - but that could just be my lack of familiarity with it. I learnt a little Ukrainian but only using duolingo.

    I don’t know if this little nugget of info might help you, but years ago I was doing a PhD in psycholinguistics. I vaguely remember that different fonts can have an effect on comprehension and recall. I briefly considered an experiment to see if stuttering could be induced by different scripts. That was a long time ago though, I don’t know if that’s still the accepted case.